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Favorite Links:
My best places to visit!
These are my favorite websites please visit them. There are Turners sites, and my other favorite sites. And there is a Stillborn petition that needs more signatures! If you want to sign it go there please especially if you live in one of the states mentioned on the petition! Thank you.
The above picture is a pencil sketch of a very dear friends daughter kaleigh that is linked to the stillbirth petition. She was stillborn on 10/18/02. Please sign the petition for angel Kaleigh. Please visit this petition and sign it if you live in one of the states mentioned. Just click on the picture to go to the site.
Picture courtious of Suzanne and Angel Kaleigh
If the link doesnt work the address is http://www.petitiononline.com/4ourkids/
Turner Syndrome Sites
Click here to learn more about Turner Syndrome
This is a short description of Turners Syndrome.
Click here to go to the TSSUS website
The Tssus website has alot of information and articles about TS and its related conditions.
Click here to go to the TS registry site
If you or your child has Turners and you haven't registered yet please do! It is very important! We need alot more people to register in order for the TSSUS to get funding to do more research on Turners Sydrome!
Click here to get the FREE comprehensive Turner Syndrome CD-ROM
The CD-ROM is a comprehensive guide to Turner Syndrome it is also a CME credit for medical professionals. The form says you have to be a medical professional to get the CD but if you fill out the form and leave the title portion blank they will still mail you the CD-ROM it does take farely long for it to be mailed to you. Oh yeah it's FREE!
Other related sites
Click here to learn more about Coarctation of the aorta
This Site is an article written by a doctor about Coarctation of the aorta (description,symptoms,treatment).
Click here to learn more about subaortic membranes
Subaortic membrane or sometimes called aortic stenosis. This site explains the condition.
Click here to learn more about bicuspid aortic valve
This site explains bicuspid aortic valve which occurs in about 30% of women and girls with TS.
Click here to share about problem pregancies
This site is a support and information group for any and all pregnancy difficulties. Also for sick babies in NICU, etc.
Click here to learn more about SID (sensory integration dysfunction)
This site is really helpful and has alot of info on sensory issues.
Click here if you are a parent or grandparent of a girl with Turner Syndrome
This website is a support group of parents and grandparents of girls with Turners. This site is private and you have to be a member to access it. But if you would like to join you can click on the link and request to join. Just give a brief description of your situation. You will get a response shortly after. (you must be a parent or grandparent of a girl with TS to be considered)!
If the link doesn't work the address is http://groups.yahoo.com/group/TSParents-3/
Click here to order a child ID bracelet!
This site has child ID bracelets which every child should have! You can put phone#,address,name, etc.
A stainless steel bracelet is only
7.95$! If the link doesnt work the address is https://secure.webformix.net/lifeline/child.htm
Click here to order a Medical ID bracelet for an adult or child.
These bracelets or necklaces are for medical Identifications. They are for children and adults!ie:doctor#,allergies,medications,conditions, parent/emergency contact. A stainless steel bracelet with the medical symbol (not optional) are 18.95$ plus 3.00$ shipping charge.
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